View Full Version : Privacy and Consent in Research: Legal and Ethical Issues

12-12-2021, 10:20 PM
A thread to discuss the legal and ethical issues for research into genetics, especially when participant phenotypes are collected.

The GDPR applies in many European countries:

The State of California:

For the United States as a whole, it is not clear what the regulations are for private research which does not involve government funds or agencies. For government funded research there is this:

In terms of ethics, in the U.S. the Belmont Report seems to be of historical significance:

I look forward to learning more on this topic and hearing your opinions on the legal and ethical issues in research, in particular as they pertain to this site.