pmokeefe
12-12-2021, 10:20 PM
A thread to discuss the legal and ethical issues for research into genetics, especially when participant phenotypes are collected.
The GDPR applies in many European countries:
https://gdpr.eu/gdpr-consent-requirements/
The State of California:
https://en.wikipedia.org/wiki/California_Consumer_Privacy_Act
For the United States as a whole, it is not clear what the regulations are for private research which does not involve government funds or agencies. For government funded research there is this:
https://en.wikipedia.org/wiki/Common_Rule
In terms of ethics, in the U.S. the Belmont Report seems to be of historical significance:
https://en.wikipedia.org/wiki/Belmont_Report
I look forward to learning more on this topic and hearing your opinions on the legal and ethical issues in research, in particular as they pertain to this site.
The GDPR applies in many European countries:
https://gdpr.eu/gdpr-consent-requirements/
The State of California:
https://en.wikipedia.org/wiki/California_Consumer_Privacy_Act
For the United States as a whole, it is not clear what the regulations are for private research which does not involve government funds or agencies. For government funded research there is this:
https://en.wikipedia.org/wiki/Common_Rule
In terms of ethics, in the U.S. the Belmont Report seems to be of historical significance:
https://en.wikipedia.org/wiki/Belmont_Report
I look forward to learning more on this topic and hearing your opinions on the legal and ethical issues in research, in particular as they pertain to this site.