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pmokeefe
12-12-2021, 10:20 PM
A thread to discuss the legal and ethical issues for research into genetics, especially when participant phenotypes are collected.

The GDPR applies in many European countries:
https://gdpr.eu/gdpr-consent-requirements/

The State of California:
https://en.wikipedia.org/wiki/California_Consumer_Privacy_Act

For the United States as a whole, it is not clear what the regulations are for private research which does not involve government funds or agencies. For government funded research there is this:
https://en.wikipedia.org/wiki/Common_Rule

In terms of ethics, in the U.S. the Belmont Report seems to be of historical significance:
https://en.wikipedia.org/wiki/Belmont_Report

I look forward to learning more on this topic and hearing your opinions on the legal and ethical issues in research, in particular as they pertain to this site.