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Thread: Sano Genetics of Cambridge England

  1. #1
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    Sano Genetics of Cambridge England

    New Scientist today has a thinly veiled 'advertorial' for Sano Genetics in Cambridge under the title 'DNA isn't a marketing tool' - says CEO of a testing company.

    Not clear if their kits are shipping yet but sounds like one of these ventures trying to match up testers with particular studies which kick off when sufficient people with that particular condition sign up. Not 100% clear at this stage if you can just buy one outright or whether you would get the data if you did.

    https://sanogenetics.com/
    YSEQ:#37; YFull: YF01405 (Y Elite 2013)
    WGS (Full Genomes Nov 2015, YSEQ Feb 2019, Dante Mar 2019, FGC-10X Linked Reads Apr 2019, Dante-Nanopore May 2019) - further WGS tests pending ;-)
    Ancestry GCs: Scots in central Scotland & Ulster, Ireland; English in Yorkshire & Pennines
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    https://sanogenetics.com/dna-kit
    We work to match you with research projects who fund the cost of genome sequencing, but not everyone will be eligible for a project immediately.

    If you want access to your genetic data with our data privacy and transparency promise you will soon be able to order a kit directly. These kits will be launched in spring 2019.

    They seem to have some funding: https://sanogenetics.com/blog/press-release
    Pioneering research platform, Sano Genetics, raises seed funding
    Start-up set to transform drug discovery and accelerate growth of personalised medicine
    9 April, 2019  Cambridge start-up Sano Genetics has raised 500,000 seed funding for its innovative research platform that is set to transform drug discovery and accelerate the growth of personalised medicine. The company will enable large-scale genetic and medical research without sacrificing data privacy  by putting the patient in the driving seat.
    YFull: YF14620 (Dante Labs 2018)

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    I had an account with them when they were called 'heterogeneous'. I uploaded raw data.

    From my stress report.

    SNP rs4680

    You have the genotype AA at position rs4680. This means you tend to have higher dopamine levels than average and may be more vulnerable to stress.

    Another key hormone, oxytocin, is also important in stress response. Individuals with one or more 'G' at the position rs53576 in the OXTR gene (which encodes the oxytocin receptor) were found to be, on average, better at handling stressful situations.
    SNP rs53576

    You have the genotype AA at position rs53576. According to this study, it suggests you might be more affected by stressful situations than average.
    Please support Mental health research and world community grid

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    "You can upload genotype data from 23andMe, AncestryDNA, MyHeritage, or Genes4Good." is already available and you can actually upload multiple DNA files but only one person by account. The reports they offer are very "boring", FDA-safe FTDNA tidbit-level, probably only worth it currently if you're trying to get picked for research. Taste preferences, eye color, freckles etc. Allows international participation, unlike most companies in the category. Be forewarned that Demongraphics, Medical History & Family History they ask when signing up default to share with researchers, though you can change them to by permission only in "Your Data". Uploaded DNA data defaults to ask-for-permission. Consent by default is against GDPR, though it's easy mistake to make. "We are getting ready to launch our own sequencing kits in spring 2019. If you would like us to notify you when they are ready, please click on the link below.", no word on price and the technology (Genotyping, exome, whole genome) is ambigious at best? But the hope is you would get picked for research and get free sequencing, I guess.

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    Aside, 'anti-marketing marketing' (What do we even call this? Includes "Company X is a criminal scam, use our criminal scam instead!") is getting annoying. "New Scientist today has a thinly veiled 'advertorial' for Sano Genetics in Cambridge under the title 'DNA isn't a marketing tool' - says CEO of a testing company." Says company who tells you your likely eye-lightness in exchange for your DNA data, and a chance to participate in a raffle for free sequencing. Yeah, the supposed promise is "get reimbursed for participating in research" but that has ethical questions, and basically all it is is a marketing gimmic to sell the DNA data forward. Personally I think more research opportunities is good, but "We're totally not like scumbag company X, even if we're doing basically same and being dishonest about it, honest" got tiring before it started...

  10. #6
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    Quote Originally Posted by Donwulff View Post
    Aside, 'anti-marketing marketing' (What do we even call this? Includes "Company X is a criminal scam, use our criminal scam instead!") is getting annoying. "New Scientist today has a thinly veiled 'advertorial' for Sano Genetics in Cambridge under the title 'DNA isn't a marketing tool' - says CEO of a testing company." Says company who tells you your likely eye-lightness in exchange for your DNA data, and a chance to participate in a raffle for free sequencing. Yeah, the supposed promise is "get reimbursed for participating in research" but that has ethical questions, and basically all it is is a marketing gimmic to sell the DNA data forward. Personally I think more research opportunities is good, but "We're totally not like scumbag company X, even if we're doing basically same and being dishonest about it, honest" got tiring before it started...
    It's weirder than that because one of the projects they are touting is Marmite which is one of the rival projects they used to lampoon the opposition.

    https://sanogenetics.com/study/marmite
    YSEQ:#37; YFull: YF01405 (Y Elite 2013)
    WGS (Full Genomes Nov 2015, YSEQ Feb 2019, Dante Mar 2019, FGC-10X Linked Reads Apr 2019, Dante-Nanopore May 2019) - further WGS tests pending ;-)
    Ancestry GCs: Scots in central Scotland & Ulster, Ireland; English in Yorkshire & Pennines
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    FBIMatch: A828783 (autosomal DNA) for segment matching DO NOT POST ADMIXTURE REPORTS USING MY KIT

  11. #7
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    The choice of projects is certainly limited , and not that inspired .
    Please support Mental health research and world community grid

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  12. #8
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    That's how I thought Dante was trying to keep costs down with the research your genes for rare diseases..ie sell your data for research in the areas you specify, which after some thought I figured I wanted to help out with any research? Since then that "rare4genes" has not been mentioned... maybe as they do appear a tad overwhelmed with the volume data processing and handling

  13. #9
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    Please note that on their Privacy Policy at https://www.dantelabs.com/pages/privacy-policy Dante Labs states the following, so there's no truth whatsoever to the claims that Dante Labs intends to sell the genetic data (Without express knowledge & consent). Of course as with any company, you need to have certain level of trust that they'll hold to their legal obligations & promises. The three months guarantee appears to have silently disappeared off their web-site which is meh, but they have made improvements in processing time and run constant discounts.

    Dante Labs will not sell, lease, or rent your individual-level information to any third party or to a third party for research purposes without your explicit consent.

    We do not share customer data with any public databases.
    We will not provide any person's data (genetic or non-genetic) to an insurance company or employer.
    We will not provide information to law enforcement or regulatory authorities unless required by law to comply with a valid court order, subpoena, or search warrant for genetic or Personal Information.

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